WHO WE ARE:
The National Multiple Sclerosis Society mobilizes people and resources to drive research for a cure and to address the challenges of everyone affected by MS. To fulfill this mission, the Society funds cutting-edge research, drives change through advocacy, facilitates professional education, collaborates with MS organizations around the world, and provides programs and services designed to help people with MS and their families move their lives forward. We partner with volunteers to accomplish our work. Staff members engage volunteers through effective and timely communications, facilitating meaningful opportunities, and continually seeking and providing feedback for reciprocal growth and learning.
Job Summary:
The AVP of Federal Government Relations is a leadership position with responsibility to shape the Society's federal policy agenda and lead the Society's strategy for advancing all policy issues in Congress and in the federal regulatory environment. The position is responsible for increasing our influence and reputation through relationships with key leaders and stakeholders across the Legislative and Executive Branches.
Main Responsibilities:
Legislative and Regulatory Leadership
Lead and implement comprehensive legislative and regulatory strategies addressing a broad range of policy issues, including policy related to healthcare access, access to medication s , and federal appropriations.
Manage a personal portfolio of policy issues, develop strategic positions and lead advocacy efforts to support individuals affected by multiple sclerosis (MS).
Design and execute advocacy strategies such as congressional meetings, coalition engagement , grassroots mobilization, and the preparation of legislative testimony and comment s .
Cultivate and sustain influential relationships with Capitol Hill and Executive Branch stakeholders to ensure the Society's policy positions are respected and impactful.
Lead the Federal Advocacy Team, providing strategic direction, coaching, and prioritization to maximize policy influence and resource allocation.
Oversee regulatory engagement strategies with key federal agencies including the FDA, NIH, CMS, and the Department of Defense to advance the Society's mission and policy goals.
Strategic Partnerships and Relationships
Manage the federal advocacy budget and lead a team of direct reports.
Provide strategic leadership across departmental initiatives, including participation i n leadership teams and guiding the planning and execution of major advocacy events such as the Public Policy Conference and virtual MS Activist engagement.
Collaborate with internal leaders across research, healthcare access, and support services to integrate data and lived experiences into advocacy messaging and policy implementation.
Cultivate and maintain high-level relationships with key stakeholders in Congress, federal agencies (e.g., FDA, NIH, CMS, DoD), and influential coalitions, often serving in leadership roles to advance the Society's priorities. Capitol Hill stakeholders include those holding relevant committee or leadership positions, potential and current legislative champions, and the leadership of the Congressional MS Caucus.
Work with the VP of Advocacy to engage the Society's Activism Advisory Committee and work closely with the Activist Engagement Team to mobilize grassroots support for federal policy initiatives.
Lead communication efforts to translate complex policy issues into accessible messages for diverse audiences, leveraging traditional and digital media, personal stories, and advocacy content to drive impact.
Job Requirements:
Required qualifications
Minimum of 7 years of progressively responsible management experience, including leadership experience.
Master ' s degree in public health , p ublic p olicy or similar or equivalent experience/degree preferred.
Knowledge of the healthcare system , health policy and the legislative process , including federal appropriations . Strong experience working with Capitol Hill and/or direct responsibility for lobbying Congress.
Knowledge of access to coverage issues, access to medications issues, biomedical research pipeline, disability and non-profit issues is a plus.
Experience with advocacy issue management and tactics.
Excellent relationship building skills and experience in public speaking.
Strong oral and written presentation skills, including the ability to write technical responses to the government, such as testimony, support letters, etc.
Knowledge and strong competencies with technology tools including the Microsoft Office suite and web-based presentation skills.
Knowledge of constituent relationship management ( i.e. Sales f orce) a plus .
Ability to travel and work occasional nights and weekends to support advocacy needs, events, committee meetings, etc.
Ability to measure impact.
Experience with bill tracking tools and lobbyist reporting preferred .
Physical & Work Environment Demands:
All positions:
The physical demands described here are representative of those that must be met by an employee to successfully perform the essential functions of this job. Reasonable accommodations can be provided to support individuals with disabilities in performing the essential functions.
Work is primarily performed remotely, however, when possible and necessary, teams meet in person to conduct the business of the organization and build team relationships.
This position will operate a computer and view the computer screen for 7-8 hours per day; finger dexterity for typing and use of a mouse or pointer device and the ability to see clearly at close range (with or without correction lenses) for detailed work on screen are required.
This position will need to use telephone and video conferencing technology; ability to communicate digitally is required.
While performing the duties of this job, the employee may be regularly required to stand, sit, talk, hear, reach, stoop, and kneel.
Light to moderate lifting may be required.
Regular, predictable attendance is required.
Additional hours may be required, which may include evening and weekend events as well as local market engagement.
Support and attendance of both indoor and outdoor in-person events to assist with setup, execution, and teardown, which may include exposure to various weather elements and the need to lift/move up to 25 lbs.
Field-based roles:
This role is market-based and requires regular, in-person attendance at meetings, constituent interactions, and events as well as travel (<]]>
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